WORLD HAEMOPHILIA DAY

We celebrate it in Timisoara, Romania. 

End Year Meeting in Buzias

Our last meeting was organized on 19th of November, in Buzias.
The two associations agreed that we had a fruitful year, with a lot of events.
We decided on the new year's projects: there will be regional meetings with patients and doctors, workshops, and meetings with government  officials.

Our guests from Hungary visited the Clinical Center „Cristian Serban” of Evaluation and Rehabilitation for Children and Adolescent,and attended the Romanian Haemophilia Association's meeting too.  

EHC Conference in Budapest

THE TWINNING PARTNERS FROM ROMANIA WILL BE THERE! 

More information about the conference: http://www.ehc2011.eu/

Twinning Haemophilia Symposium in Brasov

We chose Brasov for our twinning because it is one of the most important cities of Romania.

After a warm welkome, Mr. Andrei Daniel, the President of the Romanian Haemophilia Association presented the  haemophilia snapshot of Romania and possible ways of development.

Then Dr. Gheorghiţă Emanoil (Haematologist, Chief of Haematology Department in Emergency County Clinical Hospital, Brasov) presented  the current situation of haemophilia care in Brasov region

Dr. Gábor Varga (President of the Hungarian Haemophilia Society, Steering Committee Member of the European  Haemophilia Consortium) presented in his discourse the European Principles of Haemophilia Care

Dr. Zita Kovács (Pediatrician of Covasna County Hospital) presented the  local haemophilia care in Sfântu Gheorghe / Romania

Ms. Borbála Keszthelyi (Board Member of the Hungarian Haemophilia Society) presented "The role of statistics and database of the haemophilia care"

      Ms. Adrienn Cziczer (Physiotherapist, Volunteer of the Hungarian Haemophilia Society) presented the " Role of physiotherapist in haemophilia care"                              

Conf Dr. Delia Mihailov (Vice president of the Romanian Haemophilia Association) presented " Health economics in haemophilia"

We ended the presentations with  personal testimony of a Romanian and a Hungarian haemophilia patient

It was a real good opportunity to present to the media the Romanian haemophilia situation.  

           The local branch of the Romanian Haemophilia Association was able to present their point of view. 

 And the local doctors were there too.

 Even if the very new Ministry of Health couldn't attend our meeting, we can say that it was a well organized,  succesfull twinning. 

Meeting in Brasov

On 17th of September there will be organized a new twinning meeting in Brasov, Romania.
We shall publish very soon the program too.