The two sister haemophilia associations cellebrated by working the World Haemophilia Day! On the 15th of April there was held a symposium in Bucharest.
Here is the program:
10:30 – 11:00 Press conference
11:00 – 11:10 Welcome and introduction of meeting - Daniel Andrei, President of Romanian
Haemophilia Association, haemophilia patient
11:10 – 11:20 Message from Romanian Health Minister – Dr. Andrei Kozma, Personal Adviser of Romanian Health Minister
11:20 – 11:35 Medical care network of hemophilia patients in Romania – Prof. Univ. Dr. Margit Serban, Haematologist, Member of Sciences Medical Academy, Honoured President of
Romanian Hemophilia Association, Head of Clinical Pediatric Hospital “Louis Turcanu”
Timisoara.
11:35 – 11:50 Development of hemophilia care and the role of the patient organization in development of haemophilia care in Hungary – Dr. Gabor Varga, President of the
Hungarian Haemophilia Society; Steering Committee Member of the European
Haemophilia Consortium, hemophilia patient
11:50 – 12:05 Paediatric hemophilia care inside of Hemophilia Treatment Center – Margit Rigo, Nurse specialized in haemophilia care
12:05 – 12:20 Hemophilia management – past and present – Dr. Valentina Uscătescu,
Haematologist, Fundeni Clinical Institute, Bucharest, board member of Romanian
Hemophilia Association
12:20 – 12:35 The aspects of medical economy in hemophilia – Dr. Delia Mihailov, Vicepresident of Romanian Hemophilia Association, Conf.Univ. - University of Medicine and Farmacy “Victor Babes”, Timisoara.
12:35 – 12:50 How should physiotherapy improve the quality life of haemophiliacs – Andrea Nagy, Physiotherapist
12:50 – 13:05 Presentation of rehabilitation program at Medical Center “Cristian Serban”, Buzias – Dr. Alina Lăcătusu
13:05 – 13:15 The voice of a two patients – Nicu Mustăţea and Peter Nagy, Romanian and Hungarian perspective
We are at the beggining of the of the twinning, but after each meeting is good to talk about results too:
1. Our meeting prooved that there are no borders for haemophilia. The Hungarian Haemophilia Society and the Romanian Haemphilia Association became sister associations.
2.We became friends.
3. Dr. Andrei Kozma, the personal adviser of the Romanian Health Minister, attended the meeting. We told to him our problems and our aims. We also showed to him, that haemophilia pacients who live in two countries with simmilar economies live differently and this is innacceptable. Dr. Kozma promised that he will present everything to the Health Minister.
4. The media was there too. They heard and transmitted our message to the govenment and to the ordinary people.
5. The pharmaceutical companies attended our symposium. They are the witnesses of our start.
